SOS Project

The SOS project was written and designed collaboratively by Jodee Kulp and Karen Johnson, MS, to help families “love, laugh and live with” tough kids and to help professionals support children, young adults and caregiver families.

Project SOS has evolved into Minnesota Organization on Fetal Alcohol Syndrome Family Seminar Series and the original writing released to Better Endings New Beginnings and ToolBoxParent. We thank you www.MOFAS.org

Care Kit

What you need to know - To help you understand, protect and support a person with disabilities

Use this ‘CARE KIT’ to help others teach, support, coach or work with your child. This Care Kit will help people gain insight into managing and understanding the challenges of your child’s disability. This manual can be used for both adults and youth.

• Fill out only the pages that will be helpful.
• Make extra copies for easy handouts to teachers, coaches, babysitters, daycare, extended family, respite providers, camp counselors.
• Staple or piece them together in a 3 ring paper pocket folder or a file folder.
• Be sure to date the pages so that you know when you updated last.

This may seem like a big project, but it is a priceless tool for others working with your child. People working with your child will not be “surprised” by common or unusual behaviors. They will be able to respond more appropriately to the needs of the child and use methods of working with the child that you use in your home. Remember to update this as your child ages and becomes more independent.

List of pages available

1. Daily Living: what is the child used to on a normal day, tasks, expectations, skills, successful approaches, daily/weekly schedule, sleep, rest routine
2. Behaviors: personal safety, in home and community, support needed, steps used, successful approaches
3. Health/Nutrition: doctor phone number, any current health concerns, amount of condiments, manners, reminders to eat, nutritional meals/snacks
4. Social: skills, social/leisure schedule, likes, dislikes, hobbies, interests
5. Coping/Stress: things that upset child, how child deals with it.
6. Emergency Phone numbers: have available current list of who to call if something happens.
7. Transportation/Mobility: how and what time my child travels; exact bus route info, when expected home, cannot travel alone, at night, etc. Where can child go? What limits do you place on the child?